The organizational dimension in rare and complex diseases care management: an application of RarERN Path methodology in ataxias, dystonia and phenylketonuria.
Carola Reinhard, Tobias Hagedorn, Julie Greenfield, Holm Graeßner, Alessandro Filla, Wolfgang Oertel, Antonio Federico, Maja Relja, Giuseppe Turchetti, Leopoldo Trieste, Francesca Morgante, Paola Giunti, Anita MacDonald, Martje G Pauly, Sara Cannizzo, Vinciane Quoidbach, Monika Benson, Bernadette Sheehan Gilroy, Gregory Pastores, Julie Vallortigara, Francjan Van Spronsen, Eileen Treacy, Barry Hunt, Alvaro Hermida
BMC health services research 2025;25(1):799