A Winding Road to Health Care Equity in Sickle Cell Disease.

Kleber Y Fertrin, Ritika Walia, Daniel E Sabath

Journal: Clinics in laboratory medicine 2024;44(4):693-704

PMID: 39490125

Full Text on Elsevier Science View on PubMed

Abstract

Sickle cell disease (SCD) is a genetic disorder where red blood cells sickle, causing anemia and pain. Historically linked to marginalized groups, SCD saw little progress in treatment strategies for decades. Addressing these requires holistic strategies including dedicated centers, education, patient inclusion, and tackling implicit bias. Efforts must ensure treatments are accessible and stigma-free. Progress depends on collaboration and advocacy, aiming for an equitable, patient-focused health care system responsive to the unique needs of those with SCD. This review illustrates the actionable steps that the medical community can take to improve care for patients with SCD.

Address: Division of Hematopathology, Department of Laboratory Medicine and Pathology, University of Washington, 1144 Eastlake Avenue East, LG-200, Seattle, WA 98109, USA. Electronic address: [email protected].; Sickle Cell Disease and Iron Overload Program, Fred Hutch Cancer Center, 825 Eastlake Avenue East, MS LG-700, Seattle, WA 98109, USA; Division of Hematology and Oncology, Department of Medicine, University of Washington, 1959 Northeast Pacific Street, Seattle, WA 98109, USA.; Hematology Division, Department of Laboratory Medicine and Pathology, University of Washington; Harborview Medical Center, 3NJ345.1, Box 359743, 325 9th Avenue, Seattle, WA 98104, USA.

DOI: 10.1016/j.cll.2024.07.005

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MeSH Terms: Anemia, Sickle Cell, Humans, Health Equity, Health Services Accessibility, Healthcare Disparities