Co-design of a cancer nutrition care pathway by patients, carers, and health professionals: the CanEAT pathway.

Jenelle Loeliger, Sarah Dewar, Nicole Kiss, Jodi Dumbrell, Andrea Elliott, Kate Kaegi, Amber Kelaart, Rebecca McIntosh, Wendy Swan, Jane Stewart

Journal: Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer 2023;31(2):99

PMID: 36609614

Abstract

PURPOSE

Limited practical resources exist to guide optimal nutrition care for patients, carers, and health professionals (HPs). This study aimed to co-design a cancer nutrition care pathway to guide and improve the provision of consistent, evidence-based care with consumers and HPs.

METHODS

This study utilised an experienced-based co-design (EBCD) approach over five stages. Stage 1 involved stakeholder engagement and a literature review. Stage 2 included a survey and focus groups with patients/carers. Co-design workshops were conducted within stage 3, key stakeholder consultation within stage 4, and the finalisation and dissemination of the cancer nutrition care pathway formed stage 5. Results of stages 3 to 5 are the focus of this paper.

RESULTS

Two co-design workshops were held with patients, carers, and HPs (n = 32 workshop 1; n = 32 workshop 2), who collectively agreed on areas of focus and key priorities. Following this, a consultation period was completed with patients, carers, and HPs (n = 45) to refine the pathway. The collective outcome of all study stages was the co-design of a cancer nutrition care pathway (the CanEAT pathway) defining optimal cancer nutrition care that combines evidence-based practice tips into a centralised suite of resources, tools, and clinical guidance.

CONCLUSION

The CanEAT pathway was co-designed by patients, carers, and HPs. The EBCD approach is a meaningful way to develop targeted improvements in cancer care. The CanEAT pathway is freely available to guide and support patients, carers, and HPs to aid the implementation of optimal nutrition care into clinical practice.

© 2023. The Author(s).

Address: Nutrition & Speech Pathology Department, Peter MacCallum Cancer Centre, 305 Grattan Street, Melbourne, VIC, 3000, Australia. [email protected].; Nutrition & Speech Pathology Department, Peter MacCallum Cancer Centre, 305 Grattan Street, Melbourne, VIC, 3000, Australia.; Dietetics Department, Eastern Health, Melbourne, VIC, Australia.; Institute for Physical Activity and Nutrition, Deakin University, Geelong, VIC, Australia.; Australian Cancer Survivorship Centre, Peter MacCallum Cancer Centre, Melbourne, VIC, Australia.; Nutrition Department, Austin Health, Heidelberg, VIC, Australia.; Cancer Council Victoria, Melbourne, VIC, Australia.; healthAbility, Box Hill, VIC, Australia.; Nutrition & Dietetics, Goulburn Valley Health, Shepparton, VIC, Australia.
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