Checklist for follow-up of adolescents with chronic illness. A monitoring tool to help prepare the transition from pediatric to adult care.

C Fourmaux, H Lefevre, H Safsaf, P Jacquin, S Rouget, R de Tournemire, A-S Lambert, M Devernay, A Carlier-Gonot, M Marin, C Stheneur

Journal: Archives de pediatrie : organe officiel de la Societe francaise de pediatrie 2021;28(6):480-484

PMID: 34147297

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Abstract

Adolescence can be a particularly challenging period for individuals with a chronic illness. To help the specialized healthcare teams, an expert panel drafted a checklist of topics to be addressed throughout adolescence that are often not covered in subspecialty clinic visits such as peers, coping, adherence, understanding of illness, sexuality, etc., since these topics apply to youth with special healthcare needs. Each member of the specialized team can discuss one of the themes according to their role with the adolescent as a doctor, educator, nurse, dietician, etc. The coherence of the team enables a comprehensive approach and will facilitate the transition to adult medical care.

Address: Clinique Varennes-Jarcy, fondation santé des étudiants de France, 29, rue de la libération, 91480 Varennes Jarcy, France; French Clinical Research Group in Adolescent Medicine and Health, 75014 Paris, France.; French Clinical Research Group in Adolescent Medicine and Health, 75014 Paris, France; AP-HP, Cochin Hospital, Maison de Solenn, 75014 Paris, France; CESP, Université Paris-Saclay, 94805 Villejuif, France.; Clinique Varennes-Jarcy, fondation santé des étudiants de France, 29, rue de la libération, 91480 Varennes Jarcy, France.; French Clinical Research Group in Adolescent Medicine and Health, 75014 Paris, France; Plateforme de transition Ad'venir, Unité de médecine d'adolescent, Assistance Publique-Hôpitaux de Paris, Hôpital Robert Debré, 75019 Paris, France; Société Française de Santé de l'Adolescent (SFSA) French Society for Adolescent Health, 75019 Paris, France.; Société Française de Santé de l'Adolescent (SFSA) French Society for Adolescent Health, 75019 Paris, France; Service de pédiatrie Centre Hospitalier Sud-Francilien, 91100 Corbeil, France.; Adolescent Medicine Unit, Service de pediatrie, 92100 Boulogne, France.; Assistance Publique-Hôpitaux de Paris, Service de Médecine de l'adolescent et Service d'Endocrinologie et Diabétologie de l'Enfant (L.E., A.Lin.), Hôpital Bicêtre-Paris-Sud, 94270 Bicetre, France.; French Clinical Research Group in Adolescent Medicine and Health, 75014 Paris, France; Société Française de Santé de l'Adolescent (SFSA) French Society for Adolescent Health, 75019 Paris, France; AP-HP, Trousseau Hospital, Adolescent Medicine Unit, 75012 Paris, France.; Société Française de Santé de l'Adolescent (SFSA) French Society for Adolescent Health, 75019 Paris, France; Adolescent Medicine Unit, CHI Créteil, 94000 Créteil, France.; French Clinical Research Group in Adolescent Medicine and Health, 75014 Paris, France; Plateforme de transition Ad'venir, Unité de médecine d'adolescent, Assistance Publique-Hôpitaux de Paris, Hôpital Robert Debré, 75019 Paris, France; Centre Hospitalier Rives de Seine, French Clinical Research Group in Adolescent Medicine and Health, 92200 Neuilly sur Seine, France.; Clinique Varennes-Jarcy, fondation santé des étudiants de France, 29, rue de la libération, 91480 Varennes Jarcy, France; French Clinical Research Group in Adolescent Medicine and Health, 75014 Paris, France; Plateforme de transition Ad'venir, Unité de médecine d'adolescent, Assistance Publique-Hôpitaux de Paris, Hôpital Robert Debré, 75019 Paris, France; Université Paris-Saclay, UVSQ, Inserm, CESP, Equipe DevPsy, 94807 Villejuif, France. Electronic address: [email protected].

DOI: 10.1016/j.arcped.2021.04.013

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MeSH Terms: Adaptation, Psychological, Adolescent, Adult, Aftercare, Checklist, Chronic Disease, Female, Follow-Up Studies, Humans, Male, Transitional Care