Instruments to Assess Social Functioning in Individuals with Dementia: A Systematic Review.

Jessica Grothe, Georg Schomerus, Jens Dietzel, Steffi Riedel-Heller, Susanne Röhr

Journal: Journal of Alzheimer's disease : JAD 2021;80(2):619-637

PMID: 33579833

Abstract

BACKGROUND

Social functioning is an important parameter for the early detection and diagnosis of dementia, as well as the description of its course and the assessment of intervention effects. Therefore, valid and reliable instruments to measure social functioning in individuals with dementia are needed.

OBJECTIVE

We aimed to provide an overview of such instruments including information on feasibility and psychometric properties.

METHODS

The review is informed by the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines. Relevant literature was identified using a pre-specified search string in the databases MEDLINE, PsycINFO, and Web of Science. Information on the characteristics, feasibility, and psychometric properties of the identified instruments were extracted, summarized, and discussed.

RESULTS

Out of 5,307 articles, 8 were selected to be included in the study, describing a total of three instruments for measuring social functioning in individuals with dementia: the Nurses' Observation Scale for Geriatric Patients (NOSGER; dimension "social behavior"), the Socioemotional Dysfunction Scale (SDS), and the Social Functioning in Dementia Scale (SF-DEM). The validity of all the three instruments was overall acceptable. Reliability was high for the NOSGER scale "social behavior" and the SF-DEM. Information on the usability of the instruments tended to be scarce.

CONCLUSION

There are a few valid and reliable instruments to assess social functioning in individuals with dementia. Further considerations could comprise their feasibility with regard to measuring changes in social functioning over time, in additional target groups, e.g., different types and stages of dementia, and adaptions to different languages and cultural backgrounds.

Address: Institute of Social Medicine, Occupational Health and Public Health (ISAP), Medical Faculty, University of Leipzig, Leipzig, Germany.; Department of Psychiatry and Psychotherapy, University of Leipzig, Leipzig, Germany.; Institute of Social Medicine, Occupational Health and Public Health (ISAP), Medical Faculty, University of Leipzig, Leipzig, Germany.; Global Brain Health Institute (GBHI), Trinity College Dublin, Dublin, Ireland.
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