"Patient participation" and related concepts: A scoping review on their dimensional composition.

I Ortiz Halabi, B Scholtes, B Voz, N Gillain, N Durieux, A Odero, M Baumann, O Ziegler, R Gagnayre, M Guillaume, I Bragard, B Pétré

Journal: Patient education and counseling 2021;103(1):5-14

PMID: 31447194

Full Text on Elsevier Science View on PubMed

Abstract

OBJECTIVES

Several concepts on collaboration between patients and healthcare systems have emerged in the literature but there is little consensus on their meanings and differences. In this study, "patient participation" and related concepts were studied by focusing on the dimensions that compose them. This review follows two objectives: (1) to produce a detailed and comprehensive overview of the "patient participation" dimensions; (2) to identify differences and similarities between the related concepts.

METHODS

A scoping review was performed to synthesize knowledge into a conceptual framework. An electronic protocol driven search was conducted in two bibliographic databases and a thematic analysis was used to analyse the data.

RESULTS

The search process returned 39 articles after exclusion for full data extraction and analysis. Through the thematic analysis, the dimensions, influencing factors and expected outcomes of "patient participation" were determined. Finally, differences between the included concepts were identified.

CONCLUSION

This global vision of "patient participation" allows us to go beyond the distinctions between the existing concepts and reveals their common goal to include the patient in the healthcare system.

PRACTICE IMPLICATIONS

This scoping review provides useful information to propose a conceptual model of "patient participation", which could impact clinical practice and medical training programs.

Address: Department of Public Health Sciences, Faculty of Medicine, University of Liège, CHU de Liège, Avenue de l'Hôpital, 3 - Bât 23, 4000 Liège, Belgium. Electronic address: [email protected].; Department of Public Health Sciences, Faculty of Medicine, University of Liège, CHU de Liège, Avenue de l'Hôpital, 3 - Bât 23, 4000 Liège, Belgium. Electronic address: [email protected].; Department of Public Health Sciences, Faculty of Medicine, University of Liège, CHU de Liège, Avenue de l'Hôpital, 3 - Bât 23, 4000 Liège, Belgium. Electronic address: [email protected].; Department of Public Health Sciences, Faculty of Medicine, University of Liège, CHU de Liège, Avenue de l'Hôpital, 3 - Bât 23, 4000 Liège, Belgium. Electronic address: [email protected].; ULiege Library, University of Liege, BSV - Bibliothèque des Sciences de la Vie (CHU), B34 - Quartier Hôpital Avenue de l'Hôpital, 11, 4000 Liège, Belgium. Electronic address: [email protected].; Institute for Research on Sociology and Economic Inequalities (IRSEI) MSH, Campus Belval, University of Luxembourg, L-4366 Esch-sur-Alzette, Luxembourg. Electronic address: [email protected].; Institute for Research on Sociology and Economic Inequalities (IRSEI) MSH, Campus Belval, University of Luxembourg, L-4366 Esch-sur-Alzette, Luxembourg. Electronic address: [email protected].; Department of Endocrinology, Diabetes, and Nutrition, University Hospital Centre, CHRU de Nancy, Hôpital Brabois Adultes 1, rue du Morvan 54511 VANDOEUVRE-LES, Nancy, France. Electronic address: [email protected].; Head of the Laboratory of Education and Health Practices EA 3412, University Paris 13, LEPS, 74 Rue Marcel Cachin, 93017 Bobigny, France. Electronic address: [email protected].; Head of the Department of Public Health Sciences, Faculty of Medicine, University of Liège, CHU de Liège, Avenue de l'Hôpital, 3 - Bât 23, 4000 Liège, Belgium. Electronic address: [email protected].; Department of Public Health Sciences, Faculty of Medicine, University of Liège, CHU de Liège, Avenue de l'Hôpital, 3 - Bât 23, 4000 Liège, Belgium. Electronic address: [email protected].; Department of Public Health Sciences, Faculty of Medicine, University of Liège, CHU de Liège, Avenue de l'Hôpital, 3 - Bât 23, 4000 Liège, Belgium. Electronic address: [email protected].

DOI: 10.1016/j.pec.2019.08.001

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MeSH Terms: Humans, Patient Participation